I am proud to live in a world where technology is in such progress. It keeps growing and growing every day. The big computer box has been compressed into something so little that fits in my palm, cars are so smart these days that they tell us where to go and not the other way around…and so much amazing other stuff have developed…
However, what makes me mad, is that there are still so many illnesses that can’t be completely cured, only partly. Or there are medicine for not making it worse, but at the same time not making it better. Only for keeping it stable. And that isn’t quite enough for me.
There are so many people in this world who has to deal with illnesses that can’t be completely cured…They just have to live with it. And I am one of them.
Few years ago I discovered I have psoriasis. For those who don’t know what it is – it’s a not contagious, chronic immune-mediated disease that appears on the skin. But the sentence that made me say WHAT THE HELL was „The cause of psoriasis is not fully understood”. Turns out some people just have it and others just don’t. So I don’t know what I did to be honored with this „gift”.
Most people have it on their body, but I’m a bit „luckier” to have it on my head, cause I have medicine that partly cures it so that it’s not visible. Those who have it on their bodies have much more struggle. But still…I have to deal with this my whole life. I have to buy special shampoo that smells like skunks arm pit, and use special drops (that don’t cost cheap). So whenever I stop using those, my head will look terrible. I’m only 18 and I have to think about how to ensure myself with these things for all my life… Plus, it gets worse with stress. But how can I live without stress, when I have to deal with this? ;D It’s like a circle… I can’t stress about it, but since I have it, I am stressing about it ;D
But, there’s nothing I can do about it. I can only say IT SUCKS. And I feel sorry for people who have to live with something much worse. For them I can only say GOOD LUCK. However, there are people who are healthy but they still whine about everything. For those I can only say SHUT UP, YOU HAVE NO IDEA HOW LUCKY YOU ARE FOR BEING „JUST” HEALTHY.
Am I right? ;D
-B-
thats absolutely true baiba!!!!:)some ppl simply whine about everything even when they are lucky in amany aspects:)
ReplyDeletetrue that techonology is increasing:)reason why i am able to comment here:)
good post
take care:)
p.s u r welcome baiba!:)
I agree, healthy people need to be happy. I'm sorry that you have to go through that.
ReplyDeleteIt reminds me of what a hard time I had when I found out my son had birth defects and would die. I couldn't fathom why some people are born sick and why others are born healthy. I did come to peace with it though after time. Sometimes life is hard :9( I guess it's just good to laugh and smile as much as we can.
I'm sorry the shampoo smells so bad! Why don't they come up with a better scent?
ReplyDeleteLove the song on your blog. Isn't it from the 80's?
Well, I haven't smelled a skunk's arm pit (lately) but I will take your word for it that it is a real stinker.
ReplyDeleteAs for the psoriasis. I think that this must be a particularly difficult disorder to live with at your age.
This is the time where social activites are the most important and worrying about your psoriasis is the last thing you would want to think about.
Just believe that you are young enough that there is time for some brilliant person to find the cause and the cure.
kt
Hello girly,
ReplyDeleteI feel your pain. As you know I have all kinds of health issues they can't cure. I don't believe they can't cure it. In fact i believe they probably have many cures that are not out there due to the loss of income for pharmaceutical companies and doctors. I'm sorry you are going through this but KT is right. Maybe they will release one soon for you. That is my hope little one.
Haritha they sure does. ;D Thanks.
ReplyDeleteElisa thanks. I agree. Smiling and positivenes is the best way to deal with this. and I think you are one of the strongest woman I know. You've gone through so much in your life, but still managed to become so awesome :)
Aubrie I don't know why can't they come up with better smell for that shampoo ;DD
KT it smells really bad ;D it contains pitch...so... ;D and I try not to worry but it kinda happens naturally...
Melynda I knew you would totally understand. thanks :) I feel sorry for all the things you have to deal with...
When I learned many years ago I had Epilepsy right from the start I said"Yvonne, epilepsy is going to live with You , and Not You with it.
ReplyDeleteI have travelled many times to the US, Spain and Ireland by plane, I have it and can't do anything about it.I don't sit around and mope, as long as I take the small amount of medication I am fine.
I think you to is alot like me.
Good Luck.
Yvonne.
Hey you.. Just checking in to say hi and see how you are doing. thanks for your comments. I'm starting to do better just waiting out the next three weeks. I am not a patient person as you may have figured out by now, so sitting still is killing me worse than the surgery.. :)
ReplyDeleteWow. That must really suck.
ReplyDeleteI know what you mean about people who complain. They just irritate me. My dad's had parkinson's disease for almost 17 years now and the doctors also don't know what causes it and there is no cure (yet). The nice thing is he never ever complains.
Yeah, ungrateful people really irritate me.
BTW, nice post. :)
Yvonne "epilepsy is going to live with You , and Not You with it." this sentence is golden. I've never thought about it like that. but now I think I will
ReplyDeleteMelynda haha, you need to learn how to relax and do nothing ;D I love you. so get well soon :)
Dee it sure does suck, but I know I can survive it ;D I am strong. ;D I think ;DD thanks :)